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Faculty
Barbara Biesecker
Associate Professor
- Adjunct
Director, JHU/NHGRI Genetic Counseling Training Program
Academic Degrees
MS
Departmental Affiliation
Health, Behavior and Society
Departmental Address
Bldg 10, Room 10C101, NHGRI/NIH
10 Center Dr, Bethesda, MD 20892-1852
Phone: 301-496-3979
Fax: 301-496-7157
Research and Professional Experience

Research interests include understanding the reasons for use of new genetic tests that predict risk and implications of the results; quality of life for those living with different genetic conditions; adaptation to a genetic condition; the process and outcomes of genetic counseling and informed consent for prenatal tests.

Keywords

Health Policy and Management, Genetic Counseling

Graduate program in genetic counseling

Selected Publications

Gollust S, Thompson R, Gooding H, Biesecker, B: Living with Achondroplasia in an Average-sized World: An Assessment of Quality of Life. Am J Med Genet (accepted).

Gooding HC, Boehm K, Thompson R, Hadley D, Francomano C, Biesecker B: Issues Surrounding Prenatal Diagnosis for Achondroplasia. Prenatal Diag (in press).

Peters KA, Kong F, Hanslo M, Biesecker, B: Living with Marfan Syndrome III: Quality of Life and Reproductive Planning. Clin Genet 62:110-120, 2002.

Redlinger-Grosse K, Bernhardt B, Berg K, Muenke M, Biesecker B: The Decision to Continue: The Experiences and Needs of Parents who Receive a Prenatal Diagnosis of Holoprosencephaly. Am J Med Genet, Sept., 2002.

Gooding H, Wilfond B, Boehm K, Biesecker B: Unintended messages; the ethics of teaching genetic dilemmas. Hastings Cntr Rpt, March-April:37-39, 2002 .

Biesecker, B: Mini Review: Goals of Genetic Counseling. Clin Genet, 60:323-330, 2001.

Biesecker B, Peters K: Process Studies in Genetic Counseling: Peering into the Black Box. Am J Med Genet, 106:191-198, 2001.

Peters K, Kong F, Horne R, Francomano C, Biesecker B: Living with Marfan Syndrome I: Perceptions of the Condition. Clin Genet, 60:273-282, 2001.

Peters K, Kong F, Horne R, Francomano C, Biesecker B: Living with Marfan Syndrome II: Medication adherence and physical activity modification. Clin Genet, 60: 283-292, 2001.

Rosenthal E, Biesecker L, Biesecker B: Parental Attitudes Toward a Diagnosis in Children with Unidentified Multiple Congenital Anomaly Syndromes. Am J Med Genet 105: 2001.

Green M, Biesecker B, McInerney A, Mauger D, Fost N: An Interactive Computer Program Can Effectively Educate Patients about Genetic Testing for Breast Cancer Susceptibility. Am J Med Genet, 103:16-23, 2001.

Green M, McInerney A, Biesecker B, Fost N: Education About Genetic Testing for Breast Cancer Susceptibility: Patient Preferences for a Computer Program or Genetic Counselor. Am J Med Genet, 103:24-31, 2001.

Bernhardt B, Biesecker B, Mastromarino, C: Goals, Benefits and Outcomes of Genetic Counseling: Client and Genetic Counselor Assessment, Am J Med Genet, 94:189-197, 2000.

Biesecker B, Ishibe N, Hadley D, et al.: Psychosocial Factors Predicting BRCA1/BRCA2 Testing Decisions in Members of Hereditary Breast and Ovarian Cancer Families, Am J Med Genet, 93 (4): 257-263, 2000.

Biesecker, B: Introduction of Section: Enabling Informed Decisions about Cancer Risk. J Natl Cancer Institute Monographs, No.25, 1999.

Biesecker B and Marteau TM: The future of genetic counseling: An international perspective, Nature Genetics, 22(2): 133-137, 1999.

Lerman C, Hughes C, Benkendorf J, Biesecker B, Kerner J, Willison J, Eads N, Hadley D, Lynch J: Racial Differences in Testing Motivation and Psychological Distress Following Pre-Test Education for BRCA1 Gene Testing, Cancer Epidemiol Biomarkers, and Prev, 8:361-367, 1999.

Biesecker B: Future directions for the genetic counseling profession: Practical and ethical considerations, Kennedy Institute of Ethics Journal, 7:145-160, 1998.

Brody L and Biesecker B: Breast Cancer Susceptibility Genes: BRCA1 and BRCA2. Reviews in Molecular Medicine, Medicine, 77:3; 208-226, 1998.

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