My primary research interest is exploring the local implementation of federal policy relevant to the conduct of human subject research. In particular I am interested in the local review of human subject research and informed consent. On the former, I am currently working on projects related to the ethical quality of IRB review and communication between IRBs and Data Monitoring Committees. On the latter I am working with a multi-disciplinary team on a project related to the introduction of an experimental epigenetic test which includes a component that will test the effectiveness of an internvetion meant to improve the consent process. I am also involved in a project that has as its goal, the development of training for medical residents regarding the ethics of everyday medical practice.

Research ethics; local implementation of federal policy relevant to human subject research; HIV/AIDS policy; qualitative research methods.

Liao SM, Goldschmidt P, Sugarman J, Bok H, Brown H, Charo A, Faden R, Hare J, Kahn J, Kurtzberg J, Manton K, Moreno J, Shanwani H, Sulmasy D, Taylor H, Zoloth L. Ethical and Policy Issues Related to Progenitor Cell-based Strategies for Prevention of Atherosclerosis. To be published in Journal of Medical Ethics 2007; 33(11): pages TBA.

Taylor H. Beyond Compliance: The Need for a Measure of Ethical Quality to Enhance The Oversight of Human Subject Research. IRB: Ethics and Human Research, 2007; 29(5): 9-14

Taylor H, Johnson S. Ethics of Population Based Research. Journal of Law Medicine and Ethics, 2007; 35(2): 295-99.

Taylor H, Sugarman J, Pisetsky D, Bathon J. Formative Research in Clinical Trial Development: Attitudes of Patients with Arthritis in Enhancing Prevention Trials. Annals of Rheumatic Diseases. Accepted and published on-line August 2006 hard copy publication expected 2006.

Dickert N, Kass N, Paasche-Orlow M, Taylor H. Excluding Particular Information from Consent Forms. Accountability in Research, 2005; Jan-Mar;12(1):33-45.

Taylor, H, Wilfond B. Ethical Issues in Newborn Screening Research: Lessons from the Wisconsin Cystic Fibrosis Study. The Journal of Pediatrics, 2004; 145(3): 292-6.

Seiler N, Taylor H, Faden R. Legal and Ethical Considerations in Government Compensation Plans: A Case Study of Smallpox Vaccination. Indiana Health Law Journal, 2004 (1:1): 3-27.

Forman J, Taylor H. The Role of Empirical Research in Defining, Promoting, and Evaluating Professionalism in Context. Peer Commentary. American Journal of Bioethics, 2004 (4:2).: 40-43.

Taylor H. Children Under 14 Deserve More: Peer Commentary. American Journal of Bioethics, 2003 (3:4):33-4.

Faden R, Taylor H, Seiler N. Consent and Compensation: A Social Compact for Smallpox Vaccine Policy in the Event of an Attack Clinical Infectious Diseases, 2003; 36:1547-51.

Taylor H, Faden R. Ethical Considerations in the Formation of Smallpox Vaccine Policy, Biosecurity and Bioterrorism: Biodefense Strategy, Practice, and Science, 2003; 1(1): 47-52.

Paasche-Orlow M, Taylor H, Brancati F. Informed Consent Form Readability Standards vs. Actual Readability: A Survey of U.S. Medical School Institutional Review Boards. New England Journal of Medicine, 2003; 348(8): 721-6.

Taylor H, Kass N. “Attending to Local Justice: Lessons from Pediatric HIV,” IRB: Ethics & Human Research, 2002; 24(6): 9-17.

Taylor H, Kass N. “Factors that Influence Parent Decision-Making About Enrolling their HIV-infected Children in Clinical Research,” AIDS & Public Policy Journal, 2001; 16(½): 28-42.

Kass N, Taylor H, Anderson J. “Treatment of HIV During Pregnancy: The Shift from an Exclusive Focus on Fetal Protection to a More Balanced Approach,” American Journal of Obstetrics and Gynecology, 2000; 182 (4): 856-9.

Taylor H. “Barriers to Informed Consent,” Seminars in Oncology Nursing, 1999; 15 (2): 1-8.

Kass N, Taylor H, King P. "The Harms of Excluding Pregnant Women from Clinical Research: The Case of HIV-Infected Women," The Journal of Law, Medicine and Ethics, 1996; 24 (1): 36-46.